Life Of Sturgeweber Syndrome (Seizures) Patient Poem by Lori Triggs

Life of Sturgeweber Syndrome (Seizures) Patient
By Lori Triggs
Copyrighted 15,2009
True Story Of I And Other Sturgeweber Syndrome Patients

I am the only one that walks besides talks with the highest IQ out of over 6,000 people
the two others are a the oldest woman she can walk,
but she mentally retarded in her 50's,
the oldest man can walk, but is mentally retarded and
has a child with Sturgeweber Syndrome
plus he has the highest IQ for a guy, but I beat his IQ so I smarter than him.

Every Sturgeweber Syndrome patients has a port drink birthmark
on their face or neck or face and neck like I not a fire burn
or been out in the sun too long,
the only way to get it covered up is specialized make up costs couple $300 to 400 dollars
or get laser surgery many time 1,500 dollars each time years worth.

Sturgeweber Syndrome patients are bed ridden or in wheelchairs besides using walkers
most are retarded or cannot speak at all they are incoherent,
they are vegetables staring at anything even blind.

Sturgeweber Syndrome patient has grand-mal seizures
sometimes gets petite-Mal's seizures
with medications sustained can only controlled by
VNS stimulator pacemaker to the brain maintains the rest,
well taking vitamin C to maintain immunities from illnesses.

Medications can cost from $10 to $100's of dollars of a month
Keppra $400 dollars a month for a bottle,
Zonegran $80's of dollars a month for a bottle
Vimpat $300 a month for a bottle,
Phenobarbital $10 dollars a bottle I get two bottles 64.8 and 16.2
now can you count.

If you do not want the Sturgeweber Syndrome
there is a brain operation at a price
take out all the damaged area be in a wheelchair
as a vegetable the rest of your life or bedridden with no seizures.

I not another static join Sturgeweber Syndrome Foundation
to be a member or be a spoke person I have been asked,
I told them no same with Epilepsy Foundation
I told them to stick it where the sun do not shine
he was the founder of the Epilepsy Foundation Of NJ,
I am me only me not somebody's money maker.

Sturgeweber Syndrome patients are not to be bullied as targets
because the way we look or act with seizures,
even our disability in walkers plus in wheelchairs
bullies keep on walking keeping mouth shut, while hands down to the side.

Bullies you know who you are!

Sturgeweber Syndrome Foundation Website

http: //www.sturge-weber.org/

If you want info on Sturgeweber Syndrome (Seizures)

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